My daughter was diagnosed with a very rare genetic disorder called Angelman Syndrome it effects 1 in 15,000 people.
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She's extremely determined, she knows exactly what she wants and when she wants it, she loves the water and she is always in laughing spirits. She is very affectionate and loves to cuddle the people she loves.
What are Ava-Evelyn's favorite activities?She loves going outside rather it's for a stroll in the stroller or a walk in her walker. She absolutely loves water, and she loves listening to music and dancing.
How would $25,000 impact your family?It would highly impact our family, due to her specail needs. Equipment is extremely expensive, and with her condition being so rare there is no goverment funding ( in ontario )
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