CHARGE SYNDROME. Born at 35 weeks, given an 8%chance at life, spending 352 day in the hospital. Jasper is a Charger smiling though it all.
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Receive Text UpdatesMaking people smile day in and day out. He loves for people to talk to him. A smile or a wave lights him up. Pushing though all odds, after 28 surgeries and more to come. He has worked so hard in his short life of 3 years,overcoming many hurdles and setbacks. We work hard on physical and occupational therapys. He always has a smile even after he gets poked.
What are Jasper's favorite activities?Standing, looking out the windows. He likes throwing balls. Pushing buttons, figet spinners, and pulling strings and his tubing, alway looking to try to wiggle himself away from his gear. He love his big brothers playing/ be with him. He loves just being with people.
How would $25,000 impact your family?Dropping down to one income after his birth. Doing all the appointment and juggling his and big brothers schedules. We are stretched thin and stressed out, the money could give our family some room to breath with the bills. But mostly giving Charge Syndrome a spot light, getting it know to more people. We have to drive 2 hours one way and 2 hours back just for medical. The hospital near us, most of the staff has never heard of Charger. May be getting the word out will give better knowledge/care.
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